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How Cutting Funds to the EPA Could Affect Mesothelioma Survivors

  • Author: Heather Von St. James
  • Date: 5/8/2017

How Cutting Funds to the EPA

Through my years blogging for the Mesothelioma Cancer Alliance, I have had some pretty amazing opportunities to get my story out there through blogs, opinion pieces, and most recently an interview and video with Greenpeace. Why Greenpeace you might ask? What does an organization better known for saving the whales have to do with mesothelioma and asbestos?

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Lung Leavin’ Day 2017: Celebrating 11 Years of Mesothelioma Survival

  • Author: Heather Von St. James
  • Date: 2/3/2017

Heather 11 year Lung Leavin

My husband and I have been throwing our Lung Leavin’ Day Celebration ever since 2007.

The first year it was just the two of us, in subzero weather, with our plates, by a pitifully small bonfire. But we did it, we wrote our fears in sharpie and smashed the plates. You know what? It felt AMAZING!!!

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Dealing with a Cancer Diagnosis During the Holidays

  • Author: Heather Von St. James
  • Date: 12/15/2016

Heather and Family for Christmas

I love decorating my Christmas tree. I love pulling out all the ornaments year after year, and finding the perfect spot for each one. Like many people, the ornaments hold memories: some good, others funny, and one in particular is the most bittersweet.

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Dealing with “Scanxiety” at My Annual Mesothelioma Checkup

  • Author: Heather Von St. James
  • Date: 11/15/2016

Heather at Baylor 2016

No matter how good I feel on a day-to-day basis, every six months, the reality of being a long-term cancer survivor comes crashing back. Even though I’m going to be celebrating 11 years since my diagnosis on November 21, I still get uneasy when the time comes around for me to get on a plane, head to Houston for my scans and to see Dr. Sugarbaker.

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Fall Mesothelioma Awareness: Meso Foundation Symposium

  • Author: Heather Von St. James
  • Date: 11/1/2016

Heather and John Panza

September was such a jam-packed month of mesothelioma awareness activities, that it’s now taken me more than a month to even process it all and get it all written down. In addition to participating in Mesothelioma Awareness Day on September 26th, I went to three different events throughout the course of the month. You can read about my experiences at the Kayaking 4 Meso and Miles for Meso events.

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Fall Mesothelioma Awareness: Miles for Meso

  • Author: Heather Von St. James
  • Date: 10/26/2016

Heather Von St. James at Miles 4 Meso

September is filled with a lot of wonderful opportunities to support mesothelioma awareness through fundraising events and gatherings across the country! In my last post, I wrote about how I joined the Kayaking 4 Meso event in Upstate New York. In this post, I’m going to share my experience with the Miles for Meso event halfway across the country in Illinois.

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Fall Mesothelioma Awareness: Kayaking 4 Meso

  • Author: Heather Von St. James
  • Date: 10/20/2016

Kayaking for Meso

I love fall...especially September, but for more reasons that just the cooler weather and leaves changing color. September is a month that is full off mesothelioma awareness and fundraising events all over the country!

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How One Mesothelioma Survivor Deals With Survivor's Guilt

  • Author: Heather Von St. James
  • Date: 8/17/2016

I learned early on in my cancer treatment what a cruel, unfair thing cancer can be. It doesn’t care who you are, how old you are, or how much money you do or don’t have. Cancer has one purpose, to destroy the host, no matter who that host is – and many times, it succeeds.

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5 Things Every Advocate Should Remember

  • Author: Heather Von St. James
  • Date: 7/6/2016

Heather and friend Bruce

A strange thing happened to me during my cancer treatment: I had the strong desire to help people, to give back, to inspire. I wanted to be an advocate.

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The Real Costs of Mesothelioma and Asbestos Exposure

  • Author: Heather Von St. James
  • Date: 5/24/2016

Real Cost of Cancer

When one hears the word “mesothelioma,” everyone immediately thinks of the commercials on TV: “If you or a loved one has been diagnosed with mesothelioma, a deadly cancer caused by asbestos exposure… “ and then they think everyone who gets this cancer is automatically wealthy because of a lawsuit. Well, I’m here to set that record straight.

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About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker, world renowned mesothelioma expert and thoracic surgeon
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

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Upcoming Events

9/1/2017
Fleet Feet Sports Maine Running, Portland, ME

Kick Out Mesothelioma 5-Miler & 2.5 Mile Walk

“In memory of John W. Griffin (1941-2003), a pipefitter, Navy veteran, & City Councilor who passed away in 2003 after a 1 month diagnosis of cancer, including mesothelioma. All proceeds will benefit the Mesothelioma Applied Research Foundation. Please visit the event's page below for more information.”


September 03, 2017
Sands Expo and Convention Center, Singapore

XXI World Congress on Safety and Health at Work

“Each year the XXI World Congress is held in a different city. This year it's held in Singapore. It offers a platform for the exchange of information and views to experts in occupational safety and health, representatives of enterprises and workers (the social partners), decision-makers in governments and public authorities, and anyone else active in the area of occupational safety and health. Please visit the event's page below for more information.”

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